RecruitingNCT06850038

A Study Observing the Long-term, Effectiveness and Safety of Odevixibat (Bylvay) in Patients With Alagille Syndrome (ALGS) Who Are Receiving Ongoing Treatment

Prospective Registry-Based Study Evaluating the Effectiveness and Safety of Odevixibat in Participants With Alagille Syndrome (ALGS)


Sponsor

Ipsen

Enrollment

30 participants

Start Date

Apr 22, 2025

Study Type

OBSERVATIONAL

Conditions

Summary

This study will collect information from patients with Alagille syndrome (ALGS) as they use odevixibat (Bylvay) in their daily lives. Odevixibat is a medicine that helps patients with ALGS, a rare disease that harms their liver and causes itching. The main aim of this study is to observe the long-term, everyday effectiveness and safety of the drug odevixibat in patients with ALGS who are receiving ongoing treatment.


Eligibility

Plain Language Summary

Simplified for easier understanding

This clinical trial is studying a new treatment for people with alagille syndrome. The study is currently recruiting participants at 10 locations.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Locations(10)

Children's Hospital Los Angeles

Los Angeles, California, United States

UCSF Benioff Children's Hospital

San Francisco, California, United States

The Children's Mercy Hospital

Kansas City, Missouri, United States

SSM Health Cardinal Glennon Children's Hospital

St Louis, Missouri, United States

NYU Langone - NYU Grossman School of Medicine

New York, New York, United States

Columbia University Medical Center - Morgan Stanley Children's Hospital of NewYork - Presbyterian (MS-CHONY)

New York, New York, United States

Le Bonheur Children's Hospital

Memphis, Tennessee, United States

Children's Medical Center Of Dallas

Dallas, Texas, United States

Proactive El Paso,LLC

El Paso, Texas, United States

Primary Children's Hospital (PCH) - Intermountain Healthcare/University of Utah

Salt Lake City, Utah, United States

View Full Details on ClinicalTrials.gov

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NCT06850038


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