RecruitingPhase 4NCT07290257

Long-Term Low-Intervention SafEty and Clinical Outcomes Clinical Study of LivmArli® in Patients With Alagille Syndrome in the European Union (LEAP-EU)


Sponsor

Mirum Pharmaceuticals, Inc.

Enrollment

100 participants

Start Date

Sep 25, 2025

Study Type

INTERVENTIONAL

Conditions

Summary

The key objectives of this low-intervention clinical study are to evaluate tolerability, long-term safety and long-term efficacy for patients with Alagille syndrome (ALGS) who are prescribed Livmarli.


Eligibility

Min Age: 2 Months

Inclusion Criteria5

  • Informed consent and assent (as applicable)
  • ≥2 months of age at Day 1
  • A clinically and/or genetically confirmed ALGS diagnosis with pruritus secondary to chronic cholestasis
  • For the primary cohort, prescribed Livmarli at time of study entry
  • For the supplemental cohort, prescribed Livmarli prior to study entry

Exclusion Criteria5

  • History of Liver Transplant
  • Any contraindications against Livmarli (as per SmPC)
  • Any condition or abnormality that, in the opinion of the investigator, may interfere with the participation in or completion of the study
  • Received an investigational drug within 30 days before the first dose of Livmarli (Participation in previous maralixibat studies or expanded-access programs is acceptable.)
  • Baseline data before start of treatment of Livmarli are unavailable (\<2 values before treatment) for key safety (LFTs, FSV laboratory results) and key efficacy (sBA, pruritus) parameter

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Interventions

DRUGLivmarli Oral Product

Participants will be treated according to standard of care for the duration of the study and Schedule of Assessments.


Locations(13)

Cliniques Universitaires Saint Luc (UCLouvain)

Brussels, Belgium

University Hospital Gent (UZ Gent)

Ghent, Belgium

Hospices Civils de Lyon - Hopital Femme Mère Enfant

Bron, Auvergne-Rhône-Alpes, France

CHU de Toulouse - Hôpital des Enfants

Toulouse, Occitanie, France

Bicetre University Hospital

Le Kremlin-Bicêtre, Île-de-France Region, France

Charite Berlin

Berlin, Germany

Children's University Hospital Essen

Essen, Germany

University Hospital Hamburg-Eppendorf

Hamburg, Germany

AO Ospedale PAPA GIOVANNI XXIII

Bergamo, Lombardy, Italy

Istituto mediterraneo trapianti - ISMETT

Palermo, Sicily, Italy

University Medical Center Groningen (UMCG)

Groningen, Netherlands

Hospital Universitairo Vall D'Hebron

Barcelona, Catalonia, Spain

Hospital Universitario La Paz

Madrid, Spain

View Full Details on ClinicalTrials.gov

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NCT07290257


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