RecruitingNCT05516667

Cohort of Patients with Alzheimer's Disease and Their Families.

Pilot Phase of a Prospective Cohort of Patients with Alzheimer's Disease and Their Families

Sponsor

University Hospital, Toulouse

Enrollment

1,000 participants

Start Date

Apr 6, 2023

Study Type

OBSERVATIONAL

Conditions

Alzheimer Disease

Summary

This is the pilot phase of a longitudinal observational cohort study. The study includes family clusters comprised of a patient with Alzheimer's disease, an informal caregiver and at least one first-degree relative of the patient. The family clusters will be followed-up in expert memory centers and online in order to study risk and prognostic factors (including blood-based biomarkers) in the first-degree relatives and patients, respectively, as well as caregiver health, difficulties and needs. This pilot study is performed to assess the feasibility of conducting a larger-scale study.

Eligibility

Min Age: 18 Years

Plain Language Summary

Simplified for easier understanding

This study is following people with Alzheimer's disease, their caregivers, and close family members over time to better understand how the disease progresses and how it affects families. The study is based in France. **You may be eligible if...** - You have been diagnosed with probable Alzheimer's disease (mild to moderate stage, MMSE score ≥15) - OR you are a caregiver (helping someone with Alzheimer's at least 6 hours per week) - OR you are a first-degree relative (parent, child, sibling) of someone with Alzheimer's - You are 18 years or older (for caregivers and relatives) - You are fluent in French - You are enrolled in the French social security system - You are willing to attend check-up visits at 12 and 24 months **You may NOT be eligible if...** - You are not fluent in French - You are not affiliated with French social security - You are not willing to give written consent Talk to your doctor to see if this trial is right for you.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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