RecruitingNot ApplicableNCT05582551

Patients At Risk for Sensory Screening (HPARSS) to Enhance Sensory Deficit Screening in Childhood Cancer Survivors

Highlighting Patients At Risk for Sensory Screening (HPARSS) to Enhance Sensory Deficit Screening in Childhood Cancer Survivors

Sponsor

Washington University School of Medicine

Enrollment

146 participants

Start Date

Aug 2, 2023

Study Type

INTERVENTIONAL

Conditions

Childhood Cancer

Summary

The overall goal of this study is to attempt to overcome the organizational barriers that impede prompt screening for at-risk sensory deficits in childhood cancer survivors (CCS). Using a cross sectional design study, collaborators in the Informatics Research branch of the Institute of Informatics at the Washington University School of Medicine will identify CCS at risk for sensory deficits based upon their therapy exposure to generate the highlighting patients at risk for sensory screening (HPARSS) document. The investigators will utilize the HPARSS that will link therapy related risks for sensory deficits to specific screening procedures prompting the primary oncology provider to implement screening, diagnostic testing, and therapy.

Eligibility

Min Age: 7 YearsMax Age: 17 Years

Inclusion Criteria6

Patients with a diagnosis of pediatric cancer (diagnosis at <18 years of age)
Treatment including chemotherapy and/or radiation therapy
Completion of all cancer therapy for at least 6 months and less than 2 years
Followed in the Division of Pediatric Hematology/Oncology Program at the Washington University School of Medicine
Current age between 7 and 17 years of age (age where all of the screening tests are both valid and have been successfully performed by our group)
English speaking

Exclusion Criteria6

Undergoing active cancer treatment
Patient under the care of the Late Effects Program at St. Louis Children's Hospital
Received previous diagnostic testing or rehabilitative therapy for a secondary deficit eligible for screening.
Parents and/or patient illiteracy
No contact with treatment team in the past two years
In foster care or without a legal guardian

Interested in this trial?

Get notified about updates and connect with the research team.

Interventions

OTHERHighlighting Patients at Risk for Sensory Screening (HPARSS)

Collaborators in the Informatics Research branch of the Institute of Informatics at the Washington University School of Medicine will identify CCS at risk for sensory deficits based upon their therapy exposure to generate the HPARSS document.