Enhancing Information Management for Young Adults After Genetic Cancer Risk Testing

Inclusion Criteria21

• YA Patients:
• Ages 18-39 years, inclusive.
• Has had previous cancer genetic testing, with a finding of a pathogenic variant or VUS; patient has previously received results from the clinical team.
• English-speaking and -reading.
• Receiving care at DFCI.
• Not undergoing active cancer therapy at the time of approach.
• Clinicians:
• Cancer risk physicians (oncologists, gastroenterologists, geneticists), oncologists, nurse practitioners, physician assistants, or genetic counselors.
• English-speaking and -reading.
• Cares for YAs aged 18-39 with cancer risk syndromes.
• YA Patients:
• Ages 18-39 years, inclusive.
• Has had previous cancer genetic testing, with a finding of a pathogenic variant or VUS; patient has previously received results from the clinical team.
• English-speaking and -reading.
• Receiving care at Dana-Farber Cancer Institute.
• Did not participate in a stakeholder interview (Aim 1).
• Not undergoing active cancer therapy at the time of approach.
• Clinicians:
• Oncologists, nurse practitioners, cancer risk physicians, or genetic counselors.
• English-speaking and -reading.
• Caring for a participating YA.