RecruitingNCT05843500

Chronic Thromboembolic Disease Registry

Chronic Thromboembolic Disease: A Prospective Registry


Sponsor

University of California, San Francisco

Enrollment

100 participants

Start Date

Aug 1, 2023

Study Type

OBSERVATIONAL

Conditions

Summary

The goal of this patient registry is to learn about the natural history in patients with chronic thromboembolic disease (CTD) and/or chronic thromboembolic pulmonary hypertension (CTEPH). The main question\[s\] it aims to answer are: * Long-term outcome after various types of treatment, including medication, balloon pulmonary angioplasty, and pulmonary endarterectomy * Effect of treatment on patient's quality of life and exercise tolerance Participants will be followed longitudinally to assess their health outcomes and quality of life via chart review and health quality surveys.


Eligibility

Min Age: 18 Years

Plain Language Summary

Simplified for easier understanding

This is an observational registry (data collection study, not a treatment trial) for people with chronic thromboembolic disease — a condition where old blood clots in the lungs do not fully dissolve and cause lasting blockage and breathing problems, sometimes leading to high blood pressure in the lung arteries (pulmonary hypertension). **You may be eligible if...** - You have been referred to a specialist with suspected or confirmed chronic thromboembolic pulmonary disease or pulmonary hypertension from old clots - Diagnosis is supported by imaging evidence of chronic clots in the lung arteries - You have exercise limitations or abnormal pressures in the lung arteries **You may NOT be eligible if...** - You do not have evidence of chronic thromboembolic disease on imaging or pressure measurements - You are unable or unwilling to participate in data collection Talk to your doctor to see if this trial is right for you.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Interventions

OTHERSurvey

Patients who received medical, surgical or interventional treatment for chronic thromboembolic pulmonary hypertension will be followed and given quality of life questionnaires.


Locations(1)

University of California San Francisco

San Francisco, California, United States

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NCT05843500


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