RecruitingPhase 2NCT06092034

A Gene Therapy Study of RP-A501 in Male Patients With Danon Disease

Gene Therapy for Danon Disease: A Phase 2 Study Evaluating the Efficacy and Safety of Intravenously Administered Adeno-Associated Virus Serotype 9 (rAAV9) Vector Containing the Human LAMP2 Isoform B Transgene (RP-A501; AAV9.LAMP2B) in Male Patients With Danon Disease


Sponsor

Rocket Pharmaceuticals Inc.

Enrollment

14 participants

Start Date

Sep 5, 2023

Study Type

INTERVENTIONAL

Conditions

Summary

This is a single arm Phase 2 trial to evaluate the efficacy and safety of RP-A501, a recombinant adeno-associated virus serotype 9 (AAV9) containing the human lysosome-associated membrane protein 2 isoform B (LAMP2B) transgene, in male patients with Danon Disease.


Eligibility

Sex: MALEMin Age: 8 Years

Inclusion Criteria9

  • Documentation of a pathogenic or likely pathogenic variant of the LAMP2 gene.
  • Male.
  • Age ≥8 years.
  • Evidence of left ventricular hypertrophy with preserved systolic function phenotype as defined by each of the following:
  • Abnormal thickening of Left ventricular wall,
  • Left ventricular ejection fraction (LVEF) ≥ 50%.
  • New York Heart Association (NYHA) Class II to III.
  • High sensitivity Troponin I (hsTnI) ≥20% above the upper limit of normal (ULN)
  • Ability to comply with study procedures including investigational therapy and follow-up evaluations.

Exclusion Criteria4

  • Anti-AAV9 neutralizing antibody titer \>1:40.
  • Severe heart failure or requirement for advanced therapies.
  • History of intracardiac thrombosis or arterial thromboembolic events including stroke, transient ischemic attack (TIA), acute coronary syndrome, myocardial infarction or unstable angina.
  • Prior cardiac or other organ (lung, liver, other) transplantation.

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Interventions

GENETICRP-A501

RP-A501 is a gene therapy product consisting of a rAAV9 capsid containing the human LAMP2B transgene which will be administered as a single IV infusion.


Locations(6)

University of California, San Diego

La Jolla, California, United States

Boston Children's Hospital

Boston, Massachusetts, United States

Children's Hospital of Philadelphia

Philadelphia, Pennsylvania, United States

German Heart Center Munich

Munich, Germany

Meyer Childrens Hospital

Florence, Italy

Great Ormund Street Hospital & UCL Institute of Cardiovascular Science

London, United Kingdom

View Full Details on ClinicalTrials.gov

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NCT06092034


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