RecruitingNCT06214507

Danon Disease Natural History Study

An Observational Study of Genetic Cardiomyopathy, Danon Disease


Sponsor

Rocket Pharmaceuticals Inc.

Enrollment

60 participants

Start Date

Dec 20, 2023

Study Type

OBSERVATIONAL

Conditions

Summary

The goal of this international observational study is to learn about the natural history of Danon disease in male patients (≥8 years of age) and female patients (8 to 50 years of age).


Eligibility

Min Age: 8 Years

Plain Language Summary

Simplified for easier understanding

This clinical trial is studying No intervention for people with danon disease. The study is currently recruiting participants at 13 locations. People eligible for this study include aged 8 Years and older.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Interventions

OTHERNo intervention

No intervention


Locations(15)

Phoenix Children's Hospital

Phoenix, Arizona, United States

University of California, San Diego

La Jolla, California, United States

Children's Hospital Colorado

Aurora, Colorado, United States

University of Florida College of Medicine

Gainesville, Florida, United States

University of Michigan

Ann Arbor, Michigan, United States

Washington University

St Louis, Missouri, United States

Columbia University Medical Center/New York Presbyterian

New York, New York, United States

University of Texas, Southwestern

Dallas, Texas, United States

Texas Children's Hospital

Houston, Texas, United States

German Heart Center Munich

München, Germany

Sheba Medical Center

Ramat Gan, Israel

Azienda Ospedaliera Universitaria Meyer IRCCS

Florence, Italy

Hospital Universitario Puerta de Hierro Majadahonda

Majadahonda, Madrid, Spain

Sant Joan de Déu Hospital

Barcelona, Spain

University College London - Great Ormond Street Institute of Child Health

London, United Kingdom

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NCT06214507


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