The "What Is Important to Us" Communication Intervention Pilot Clinical Trial
Seattle Children's Hospital
160 participants
Feb 10, 2025
INTERVENTIONAL
Conditions
Summary
The objective of this study is to conduct a pilot randomized controlled trial (RCT) of a photo-narrative communication intervention developed by our study team with patients/parents of children with severe neurological impairment (SNI) and their pediatric intensive care unit (PICU) clinicians to assess feasibility, acceptability, and early efficacy.
Eligibility
Inclusion Criteria8
- Children with SNI
- Hospitalized at study sites
- Ages 6 months through 25 years old
- Has had SNI for >6 months, defined as permanent static or progressive central nervous system injury resulting in motor/cognitive impairment and medical complexity
- Parent/legally authorized representative of an eligible child with SNI
- Preferred language of care English and/or Spanish
- Clinicians
- Inclusion -Licensed physicians, nurses, advanced practice providers, respiratory therapists at study site
Exclusion Criteria6
- Has never previously been home/discharged
- Has an expected hospital length of stay <2 days
- Has a life expectancy of <4 weeks
- Previous study participation
- Parents
- Previous study participation
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Interventions
The "What Is Important to Us" intervention is a photo-narrative invention that prompts parents to select a total of 1-3 photos that are then displayed at their child's ICU bedside representing: 1) who is important in our family; 2) what strengthens us as parents; 3) how we know our child is feeling well; and 4) what makes our child's hospitalization easier. Parents are encouraged to discuss the pictures with clinicians caring for their child. Clinicians caring for the child are sent the photos electronically along with suggested discussion prompts to use with parents..
Locations(1)
View Full Details on ClinicalTrials.gov
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NCT06208332