RecruitingPhase 3NCT06366464

A Study of Pitolisant in Patients With Prader-Willi Syndrome

A Phase 3, Randomized, Double-Blind, Placebo-controlled, Efficacy and Safety Study of Pitolisant Followed by an Open-Label Extension in Patients With Prader-Willi Syndrome


Sponsor

Harmony Biosciences Management, Inc.

Enrollment

134 participants

Start Date

May 28, 2024

Study Type

INTERVENTIONAL

Conditions

Summary

This is a Phase 3, randomized, double-blind, placebo-controlled, multicenter, global clinical study to assess the efficacy and safety of pitolisant in patients living with Prader-Willi syndrome. The primary objective of this study is to evaluate the efficacy of pitolisant in treating excessive daytime sleepiness (EDS) in patients ≥6 years of age with Prader-Willi syndrome. Secondary objectives include assessing the impact of pitolisant on: Irritable and disruptive behaviors Hyperphagia Other behavioral problems including social withdrawal, stereotypic behavior, hyperactivity/noncompliance, and inappropriate speech


Eligibility

Min Age: 6 Years

Inclusion Criteria4

  • Genetically confirmed diagnosis of PWS
  • Excessive daytime sleepiness
  • Has a consistent parent/caregiver (preferably the same person throughout the study) who is willing and able to complete the required study assessments.
  • In the opinion of the Investigator, the patient/parent(s)/caregiver(s)/legal guardian(s) are capable of understanding and complying with the requirements of the protocol and administration of oral study drug.

Exclusion Criteria3

  • Has a diagnosis of sleep apnea (OSA, CSA) that is not adequately controlled
  • Has a diagnosis of hypersomnia due to another sleep/medical disorder
  • Participation in an interventional research study involving another investigational medication, device, or behavioral treatment within 30 days or 5 half-lives (whichever is longer) of the investigational medication prior to Screening

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Interventions

DRUGPitolisant tablet

Pitolisant tablet

OTHERPlacebo tablet

Placebo tablet


Locations(54)

Santa Monica Clinical Trials

Los Angeles, California, United States

Center of Excellence in Diabetes and Endocrinology

Sacramento, California, United States

Rady Children's Hospital - Scan Diego

San Diego, California, United States

Colorado Children's Hospital

Aurora, Colorado, United States

Nemours Children's Hospital

Wilmington, Delaware, United States

Atlanta Diabetes Associates

Atlanta, Georgia, United States

Emory University School of Medicine

Atlanta, Georgia, United States

Rare Disease Research

Atlanta, Georgia, United States

Ann And Robert H Lurie Children's Hospital of Chicago

Chicago, Illinois, United States

Riley Children's Hospital

Indianapolis, Indiana, United States

Johns Hopkins Hospital

Baltimore, Maryland, United States

Mayo Clinic-PPDS

Rochester, Minnesota, United States

Maimonides Medical Center

Brooklyn, New York, United States

Montefiore Medical Center

The Bronx, New York, United States

Science 37 (at-home option)

Morrisville, North Carolina, United States

CTI Clinical Research Center

Cincinnati, Ohio, United States

Center for Human Genetics

Cleveland, Ohio, United States

Texas Children's Hospital

Houston, Texas, United States

Road Runner Research

San Antonio, Texas, United States

Texas Valley Clinical Research

Weslaco, Texas, United States

Childrens Hospital of Wisconsin

Milwaukee, Wisconsin, United States

Queensland Children's Hospital

Brisbane, Queensland, Australia

Royal Prince Alfred Hospital

Camperdown, Australia

Sydney Children's Hospital

Randwick, Australia

Children's Hospital at Westmead

Westmead, Australia

UZ Brussels

Jette, Belgium

AMNDX Inc.

Thornhill, Ontario, Canada

Jodha Tishon Inc.

Toronto, Ontario, Canada

Aarhus University Hospital

Aarhus, Denmark

Rigshospitalet

Copenhagen, Denmark

CHU d'Angers

Angers, France

CHU de Toulouse-Hôpital Des Enfants

Toulouse, France

University Hospital Essen

Essen, Germany

Azienda Ospedaliero Universitaria A Meyer

Florence, Italy

Istituto G Gaslini Ospedale Pediatrico IRCCS - INCIPIT - PIN

Genova, Italy

Ospedale San Raffaele S.r.l. - PPDS

Milan, Italy

Azienda Ospedale Università Padova - Dipartimento Salute della Donna e del Bambino - INCIPIT - PIN

Padova, Italy

Ospedale Pediatrico Bambino Gesù IRCCS

Roma, Italy

IRCCS Materno Infantile Burlo Garofolo - INCIPIT - PIN

Trieste, Italy

Samodzielny Publiczny Szpital Kliniczny

Szczecin, Poland

Uniwersytecki Szpital Kliniczny im. Jana Mikulicza-Radeckiego we Wroclawiu-Chalubinskiego 2-2a

Wroclaw, Poland

Institutul National de Endocrinologie C. I. Parhon

Bucharest, Romania

Institutul National de Endocrinologie C. I. Parhon

Bucharest, Romania

National Clinical Center for Children Neurorehabilitation "Dr. Nicolae Robanescu"

Bucharest, Romania

Louis Turcanu Emergency Clinical Hospital for Children

Timișoara, Romania

Corporacio Sanitaria Parc Tauli, Sabadell

Barcelona, Spain

Hospital Sant Joan de Deu

Barcelona, Spain

Hospital Universitario 12 de Octubre

Madrid, Spain

Universitario Virgen de la Victoria

Málaga, Spain

Karolinska Universitetssjukhuset Solna

Solna, Sweden

Fulbourn Hospital

Cambridge, England, United Kingdom

Hull Royal Infirmary

Hull, England, United Kingdom

Ninewells Hospital - PPDS

Dundee, Scotland, United Kingdom

Royal Hospital for Children and Young People

Edinburgh, Scotland, United Kingdom

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NCT06366464


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