RecruitingNot ApplicableNCT06386198

HEalth Advocate for Liver Transplantation: Improving Transition of Care for Adolescent Liver Transplant Recipients

Sponsor

University of California, San Francisco

Enrollment

20 participants

Start Date

Mar 3, 2024

Study Type

INTERVENTIONAL

Conditions

Liver Transplant; Complications Pediatric ALL

Summary

The Health Advocate for Liver Transplant (HEAL-Tx) Transition of Care Pilot is a nonrandomized, open-label intervention pilot of a health advocate intervention aimed to assess feasibility and acceptability of integrating a Health Advocate onto the transplant team to help adolescents transition their care to adult transplant teams. Across studies, health advocate roles vary, and can include coordinating medical care treatment, facilitating financial assistance (e.g., taxi vouchers), and connecting patients to community resources, which can improve self-management, mitigate social risks, and lead to better communication between the healthcare system and the family. In this pilot, the investigators will adapt this intervention for adolescent/young adult liver transplant patients and measure acceptability and feasibility according to RE-AIM.

Eligibility

Min Age: 18 YearsMax Age: 25 Years

Plain Language Summary

Simplified for easier understanding

This study tests a Health Advocate program to help young liver transplant recipients (ages 18–25) transition smoothly from a children's hospital to an adult transplant team. Participants receive support addressing social needs like food insecurity and help staying engaged in their care. **You may be eligible if...** - You received a liver transplant more than 1 year ago - You are between 18 and 25 years old - You will be transferring to an adult transplant team within 6 months - You have an unmet social need (like food insecurity) or a high medical vulnerability score - You read and write English or Spanish - You have a phone or tablet that can do video calls via Zoom **You may NOT be eligible if...** - You have significant cognitive impairment - You are outside the 18–25 age range - You are a ward of the state - You do not speak English or Spanish - You live outside the US Talk to your doctor to see if this trial is right for you.

This is a simplified summary. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Interventions

BEHAVIORALHealth Advocate

The Health Advocate intervention will include helping pediatric liver transplant recipients and their families address unmet household social needs (e.g., food insecurity), improve patient-provider communication, and enhance care coordination.