RecruitingNCT06496945

Assessing the Impact of DAy Programs on Individuals Living with Dementia and Their Family/friend Caregivers

Assessing the Impact of DAy Programs on Individuals Living with Dementia and Their Family/friend Caregivers (AIDA-DemCare)

Sponsor

York University

Enrollment

3,000 participants

Start Date

Nov 1, 2024

Study Type

OBSERVATIONAL

Conditions

Old Age; Dementia Adult Day Programs Continuing Care Family/Friend Caregivers

Summary

This study seeks to understand the effects of adult day programs on older adults, especially those with dementia, and their caregivers. A prospective cohort study will be conducted in the Canadian provinces of Alberta, British Columbia, Manitoba, and Ontario. Participants will be (1) older adults with dementia who attend a day program, and their caregivers, and (2) older adults with dementia in the community who do not attend a day program, and their caregivers. The objectives are to (1) evaluate the effects of day programs on attendee and caregiver outcomes, and (2) compare day program use patterns, attendee and caregiver social identities, day program characteristics, and day program outcomes between the 4 provinces, and (3) to explore what attendee and caregiver social identities and day program characteristics are associated with study outcomes, and with day program attendance/non-attendance.

Eligibility

Min Age: 65 Years

Plain Language Summary

Simplified for easier understanding

This study is examining whether adult day programs (structured daytime care programs for seniors) improve quality of life and reduce caregiver burden for people living with dementia and their family members or friends who care for them. **You may be eligible if...** - You are 65 or older and have been diagnosed with dementia, and you live in the community (not a nursing home) - You either currently attend an adult day program OR receive other community-based continuing care at home - You are the primary caregiver of someone who meets the above criteria **You may NOT be eligible if...** - You live in a nursing home or long-term care facility - You do not receive any community-based continuing care services - You attend a day program that did not participate in this research Talk to your doctor to see if this trial is right for you.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Interventions

OTHERAdult day program use

Day program use patterns will be determined, using Latent Class Analysis. Three continuous variables will be categorized as low, low-moderate, high-moderate, high, using sample distribution quartiles: (1) Time between first RAI-HC assessment and first attendance of a day program, (2) average number of hours of day program attendance (i.e., total number of hours spent in a day program divided by the number of times attended), and (3) total number of days a person attended a day program.

OTHEROther community care (non-attendees)

Any publicly funded continuing care services in the community, other than adult day programming (e.g., home care, in-home respite). Community care participants will be propensity score matched with day program participants, using RAI-HC variables on day program eligibility (to ensure similarity of non-attendees to day program attendees). Matching variables will include: physical functioning, cognition, behavioural symptoms, bladder/bowel continence, availability of a caregiver, and caregiver distress. The investigators will also include variables on health and social characteristics (e.g., age, sex, type/duration of publicly funded community care received before the matching index date, deprivation indices).