RecruitingNCT06496945

Assessing the Impact of DAy Programs on Individuals Living with Dementia and Their Family/friend Caregivers

Assessing the Impact of DAy Programs on Individuals Living with Dementia and Their Family/friend Caregivers (AIDA-DemCare)

Sponsor

York University

Enrollment

3,000 participants

Start Date

Nov 1, 2024

Study Type

OBSERVATIONAL

Conditions

Old Age; Dementia Adult Day Programs Continuing Care Family/Friend Caregivers

Summary

This study seeks to understand the effects of adult day programs on older adults, especially those with dementia, and their caregivers. A prospective cohort study will be conducted in the Canadian provinces of Alberta, British Columbia, Manitoba, and Ontario. Participants will be (1) older adults with dementia who attend a day program, and their caregivers, and (2) older adults with dementia in the community who do not attend a day program, and their caregivers. The objectives are to (1) evaluate the effects of day programs on attendee and caregiver outcomes, and (2) compare day program use patterns, attendee and caregiver social identities, day program characteristics, and day program outcomes between the 4 provinces, and (3) to explore what attendee and caregiver social identities and day program characteristics are associated with study outcomes, and with day program attendance/non-attendance.

Eligibility

Min Age: 65 Years

Inclusion Criteria2

Older adults (65+ years) with a diagnosis of dementia, who live in the community, and either attend an adult day program (cohort 1), or receive continuing care in the community with an initial RAI-HC assessment completed (cohort 2)
Primary caregiver (i.e., most involved with and informed about the care) of an eligible older adult

Exclusion Criteria3

Older adults with or without dementia who do not receive any community-based continuing care service
Day program attendees or community care recipients who do not have a diagnosis of dementia or who are younger than 65 years
Secondary caregivers

Interventions

OTHERAdult day program use

Day program use patterns will be determined, using Latent Class Analysis. Three continuous variables will be categorized as low, low-moderate, high-moderate, high, using sample distribution quartiles: (1) Time between first RAI-HC assessment and first attendance of a day program, (2) average number of hours of day program attendance (i.e., total number of hours spent in a day program divided by the number of times attended), and (3) total number of days a person attended a day program.

OTHEROther community care (non-attendees)

Any publicly funded continuing care services in the community, other than adult day programming (e.g., home care, in-home respite). Community care participants will be propensity score matched with day program participants, using RAI-HC variables on day program eligibility (to ensure similarity of non-attendees to day program attendees). Matching variables will include: physical functioning, cognition, behavioural symptoms, bladder/bowel continence, availability of a caregiver, and caregiver distress. The investigators will also include variables on health and social characteristics (e.g., age, sex, type/duration of publicly funded community care received before the matching index date, deprivation indices).