RecruitingNCT06885918

ALS Research Collaborative

ALS Translational Research Program


Sponsor

ALS Therapy Development Institute

Enrollment

2,000 participants

Start Date

Sep 12, 2014

Study Type

OBSERVATIONAL

Conditions

Summary

The goal of this natural history study is to learn more about the biological and clinical aspects of amyotrophic lateral sclerosis (ALS). This study's findings will help with drug discovery, biomarker discovery, and outcome measure validation. Adults living with ALS, other motor neuron diseases (MND), a known mutation related to ALS and healthy volunteers contribute prospective and retrospective data to this study remotely. The study is sponsored and conducted by the ALS Therapy Development Institute.


Eligibility

Min Age: 18 Years

Inclusion Criteria3

  • years of age or older
  • Can communicate in written English
  • Has a diagnosis of ALS/MND or is a known carrier of an ALS associated mutation

Exclusion Criteria1

  • Significant cognitive impairment that would prevent individual completion and understanding of the informed consent process.

Locations(1)

ALS Therapy Development Institute

Watertown, Massachusetts, United States

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NCT06885918


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