RecruitingNCT06885918

ALS Research Collaborative

ALS Translational Research Program

Sponsor

ALS Therapy Development Institute

Enrollment

2,000 participants

Start Date

Sep 12, 2014

Study Type

OBSERVATIONAL

Conditions

Amyotrophic Lateral Sclerosis Motor Neuron Disease ALS (Amyotrophic Lateral Sclerosis)ALS With Frontotemporal Dementia (ALS/FTD)

Summary

The goal of this natural history study is to learn more about the biological and clinical aspects of amyotrophic lateral sclerosis (ALS). This study's findings will help with drug discovery, biomarker discovery, and outcome measure validation. Adults living with ALS, other motor neuron diseases (MND), a known mutation related to ALS and healthy volunteers contribute prospective and retrospective data to this study remotely. The study is sponsored and conducted by the ALS Therapy Development Institute.

Eligibility

Min Age: 18 Years

Plain Language Summary

Simplified for easier understanding

This is a research registry and collaborative study for people living with ALS (amyotrophic lateral sclerosis, also called motor neurone disease or MND). The goal is to gather data to better understand the disease and accelerate the search for effective treatments. This is not a treatment trial — it focuses on data collection and research participation. **You may be eligible if...** - You are 18 or older - You have been diagnosed with ALS or MND, OR you are a known carrier of a genetic mutation associated with ALS - You can communicate in written English **You may NOT be eligible if...** - You have significant cognitive impairment that prevents you from understanding or completing the consent process Talk to your doctor to see if this trial is right for you.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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