RecruitingNCT07761026

AXIS MG Patient Registry

AXIS Autoimmune Neurology Registry


Sponsor

Autoimmune Neurology Alliance

Enrollment

1,000 participants

Start Date

Mar 19, 2026

Study Type

OBSERVATIONAL

Conditions

Summary

The goal of the AXIS Autoimmune Neurology Registry is to learn about the experiences of adults living with autoimmune neurological disorders, starting with myasthenia gravis (MG), over time. The main questions the registry aims to answer are: * How do symptoms, daily functioning, and quality of life change over time? * What treatments do participants use, and how are these treatments related to their symptoms and health? * What challenges do participants experience with treatment, including side effects, treatment burden, missed doses, and access to care? Participants will: * Join the registry and complete an enrollment survey (online or through a mobile app) * Complete a brief online survey about their MG approximately once a month * Provide information that can help confirm their MG diagnosis * Optionally, share their medical records with the research team This is an observational study. The registry will not assign treatments or ask participants to change their medical care. Information collected through the registry may help researchers better understand MG and improve future research and care.


Eligibility

Min Age: 18 Years

Plain Language Summary

Simplified for easier understanding

This clinical trial is studying a new treatment for people with achr myasthenia gravis, achr-ab seropositive generalized myasthenia gravis, and other related conditions. The study is currently recruiting participants at 1 location.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Locations(1)

Alira Health - Virtual/Remote Site - Can Be Completed 100% Online - All US Residents Accepted

Framingham, Massachusetts, United States

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NCT07761026


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