RecruitingNCT01018537

NARCOMS Registry: A Multiple Sclerosis Registry

NARCOMS Global Multiple Sclerosis Registry: A Long-Term Study to Facilitate Research in Multiple Sclerosis


Sponsor

University of Texas Southwestern Medical Center

Enrollment

50,000 participants

Start Date

Jan 1, 1996

Study Type

OBSERVATIONAL

Conditions

Summary

This project is based on the idea that we can learn about the complexities of MS by following disease and treatment patterns in a large group of people over several years. The information gathered is used for research only. Results are presented in summary form only. All details submitted by registry participants is strictly confidential. To participate in NARCOMS complete the baseline enrollment survey online through www.narcoms.org (or directly using the following link: https://redcap.link/py2rnyyn) or you can request a mail-in survey be sent to you by emailing MSregistry@narcoms.org. You will be asked to update your information, online or by mail, twice a year. Each update survey typically takes less than 20 minutes to complete. There is no cost to participate. For your participation you are offered a free subscription to the NARCOMS quarterly magazine, NARCOMS Now. NARCOMS Now provides a reliable source of information about the latest in MS research and disease management. You can stop participating in the registry at any time. You may also receive additional surveys or information on clinical trials. You are not obligated to participate and these additional studies will always come directly from NARCOMS. Your contact information will not be shared or sold to other parties.


Eligibility

Min Age: 18 Years

Plain Language Summary

Simplified for easier understanding

This is a national multiple sclerosis (MS) patient registry that collects health information and tracks disease progression over time to support MS research and improve understanding of how the disease affects daily life. **You may be eligible if...** - You have been diagnosed with multiple sclerosis (MS) or clinically isolated syndrome (a first episode that may lead to MS) - You are at least 18 years old **You may NOT be eligible if...** - There are no exclusion criteria for this registry Talk to your doctor to see if this trial is right for you.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Locations(1)

UT Southwestern Medical Center

Dallas, Texas, United States

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NCT01018537


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