Measuring Family Engagement in Care (The FAME Study)
Lady Davis Institute
198 participants
Jan 31, 2023
OBSERVATIONAL
Conditions
Summary
There are currently no validated tools to specifically measure family engagement in the intensive care unit (ICU). To address this gap, an interdisciplinary team developed a novel instrument to measure family engagement in the ICU. This will be a prospective observational cohort with an embedded qualitative study to validate the FAMily Engagement (FAME) instrument in the ICU setting. This study will also evaluate the association between family activation, engagement, and family-centred outcomes, and exploring factors (age, relationship, sex, gender, race/ethnicity) that may influence family engagement in the ICU.
Eligibility
Inclusion Criteria3
- Family member of patient admitted to the intensive care units
- Able to participate in English or French
- Age 18 years old or older
Exclusion Criteria2
- ICU stays less than 24 hours
- Another family member has already participated in the study
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Locations(6)
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NCT05659485