RecruitingNCT06054295

Somatic Mosaicism in Twins Discordant for Childhood Cancer

Somatic Mosaicism in Twins Discordant for Childhood Cancer: a Pilot Study


Sponsor

Children's Oncology Group

Enrollment

50 participants

Start Date

Jun 3, 2024

Study Type

OBSERVATIONAL

Conditions

Summary

Somatic mosaicism in cancer associated genes is one potential explanation for discordance in childhood cancer that has not been fully explored to date. This pilot study will focus on twins with central nervous system (CNS) tumors who are identified through the Children's Oncology Group's Project: EveryChild (PEC) registry or volunteer.


Eligibility

Max Age: 18 Years

Inclusion Criteria6

  • Newly diagnosed patient with CNS tumor or have recurrent disease and enrolled on APEC14B1.
  • Patient must have same sex twin. Note: (history of) treatment on a COG therapeutic trial is not required.
  • Patients must be diagnosed at \< 19 years of age at the time of diagnosis.
  • A family is eligible to participate if the twin with the CNS tumor is deceased but has a blood sample banked through APEC14B1.
  • All patients and/or their parents or legal guardians must provide informed consent. Assent will be obtained for participants between the ages of 8-17 years.
  • All institutional, FDA, and NCI requirements for human studies must be met.

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Interventions

OTHERBiospecimen collection

Collection of both blood and saliva samples from participants at the time of study enrollment

OTHERQuestionnaire Administration

The brief questionnaire will assess health history, demographics, environmental exposures, family history of cancer, and birth characteristics.


Locations(1)

University of Minnesota

Minneapolis, Minnesota, United States

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NCT06054295


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