RecruitingNot ApplicableNCT06864351

Prospective Evaluation of OptiThyDose

Prospective Evaluation of OptiThyDose, a Mathematical Model for Calculating Appropriate Dose Ranges in Children With Thyroid Diseases


Sponsor

University Children's Hospital Basel

Enrollment

150 participants

Start Date

Aug 28, 2025

Study Type

INTERVENTIONAL

Conditions

Summary

The aim of this multicentric, randomised, two-arms and single-blinded clinical trial is to prospectively evaluate OptiThyDose for Congenital hypothyroidism (CH) and Graves' disease (GD).


Eligibility

Max Age: 18 Years

Inclusion Criteria9

  • Congenital hypothyroidism (CH)
  • Newborns with pathological neonatal screening and confirmation of an increased Thyrotropin (TSH) level in an independent venous blood sample
  • Graves' disease (GD)
  • Children until 18 years with new diagnosis of GD, recurrence of GD, or insufficiently controlled GD under CMZ/MMZ during follow-up according to:
  • Pathological lab values (suppressed TSH, increased thyroid hormone levels, positive Anti-TSH-receptor antibodies)
  • Typical clinical picture, if present (goitre, tachycardia, palpitations, weight loss, hyperphagia, altered mood)
  • CH and GD
  • The study participant must be accessible for scheduled visits, treatment and follow-up.
  • Signed Informed Consent form (ICF) obtained prior to any study related procedure. Written IC for study participation must be signed and dated by the patient and/or his/her legal representative(s) in accordance with national legal requirements

Exclusion Criteria9

  • CH and GD
  • Exclusion of newborns from mothers with GD
  • Exclusion of patients in case of a life-threatening event
  • GD
  • Exclusion of children with known other aetiologies of hyperthyroidism than GD without elevated Anti-TSH-receptor antibodies e.g.:
  • known toxic thyroid nodules proven by ultrasound/scintigraphy
  • known amiodarone induced hyperthyroidism
  • known McCune Albright syndrome (based on clinical, laboratory, and genetic diagnosis) associated hyperthyroidism
  • known genetically proven hyperthyroidism caused by activating mutations of the TSH receptor gene

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Interventions

OTHEROptiThyDose

OptiThyDose is an iterative mathematical model applied at each patient visit, consisting of three components: (i) a disease-specific pharmacometrics (PMX) model, (ii) an empirical Bayesian estimation (EBE) component, and (iii) an optimal control theory (OCT) component. It calculates the optimal LT4 or CMZ/MMZ dose to maintain Free Thyroxine (FT4) levels within the upper half of the age-specific reference range, integrating past clinical and lab data. Dosing follows international guidelines, with physicians able to consult OptiThyDose for individualized dosing within recommended ranges. At each outpatient visit, the physician can either (A) prescribe a dose within OptiThyDose's suggested range or (B) choose a dose based on personal experience.


Locations(2)

Department of Paediatric Endocrinology, Diabetology and Gynaecology, Hôpital Necker-Enfants Malades, Assistance Publique-Hôpitaux de Paris

Paris, France

Paediatric Endocrinology and Diabetology, University Children's Hospital Basel (UKBB)

Basel, Canton of Basel-City, Switzerland

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NCT06864351


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