RecruitingNot ApplicableNCT05596760

Promoting Goals-of-Care Discussions for Patients With Memory Problems and Their Caregivers

Hybrid Efficacy-effectiveness Trial to Promote Goals-of-care Discussions for Patients With Alzheimer's Disease and Related Dementias and Their Family Caregivers

Sponsor

University of Washington

Enrollment

1,800 participants

Start Date

Sep 11, 2023

Study Type

INTERVENTIONAL

Conditions

Quality of Life Dementia Cognitive Dysfunction Huntington Disease Alzheimer Disease Dementia, Vascular Lewy Body Disease Chronic Disease Frontotemporal Lobar Degeneration Cognitive Aging Mixed Dementias Creutzfeldt-Jakob Syndrome Palliative Care, Patient Care Health Care Quality, Access, and Evaluation Patient Care Health Communication Patient Care Planning

Summary

The goal of this clinical trial is to improve communication among clinicians, patients with memory problems, and their family members. We are testing a way to help clinicians have better conversations to address patients' goals for their healthcare. To do this, we created a simple, short guide called the "Jumpstart Guide." The goal of this research study is to show that using this kind of guide is possible and can be helpful for patients and their families. Patients' clinicians may receive a Jumpstart Guide before the patient's clinic visit. Researchers will compare patients whose clinician received a Jumpstart Guide to patients whose clinician did not receive a guide to see if more patients in the Jumpstart Guide group had conversations about the patient's goals for their healthcare. Patients and their family members will also be asked to complete surveys after the visit with their clinician.

Eligibility

Min Age: 18 Years

Plain Language Summary

Simplified for easier understanding

This trial tests whether a structured program to discuss future care goals helps patients with Alzheimer's disease or dementia and their caregivers make better care decisions. **You may be eligible if...** - You are 55 or older receiving outpatient care at a UW Medicine clinic - You have a documented diagnosis of Alzheimer's disease or related dementia (ADRD) in your medical record within the past 2 years **You may NOT be eligible if...** - You have legal restrictions or risk management concerns - You lack decision-making capacity and do not have a legal surrogate - You do not speak English (for surveys and interviews) - Your doctor has chosen not to participate in the study Talk to your doctor to see if this trial is right for you.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

Interested in this trial?

Get notified about updates and connect with the research team.

Interventions

BEHAVIORALJumpstart Guide

The Jumpstart Guide is a communication-priming intervention for clinicians, patients and their families in the outpatient setting. The intervention's goal is to prompt clinicians to provide, during a scheduled (non-urgent) clinic visit, standard of care which includes a discussion with patients (and/or their LNOKs) about their goals of care. It is designed to promote and guide these discussions for older adults with memory problems through suggestions and tips on the Jumpstart Guide.