RecruitingNCT06617741

Myasthenia Gravis Foundation of America Global MG Patient Registry


Sponsor

Myasthenia Gravis Foundation of America

Enrollment

3,800 participants

Start Date

Oct 12, 2013

Study Type

OBSERVATIONAL

Conditions

Summary

The goal of this observational study is to learn about the experiences of people living with Myasthenia Gravis (MG) in the United States. The main questions it aims to answer are: * How and when are people with MG diagnosed? * What are the most common symptoms associated with MG? * What treatments are being used to treat MG? * What are the impacts of MG on activities of daily living, employment and quality of life? * What are the experiences with exacerbation, hospitalization and healthcare access for people with MG? Participants will answer a survey to enroll in the study, and be invited to fill out an update survey twice a year.


Eligibility

Min Age: 18 Years

Inclusion Criteria2

  • age over 18
  • positive MG diagnosis

Exclusion Criteria2

  • age under 18
  • misdiagnosed with MG

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Locations(1)

Myasthenia Gravis Foundation of America

Westborough, Massachusetts, United States

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NCT06617741


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