RecruitingEarly Phase 1NCT06511752

Educational Support Group Program for Bilingual and Spanish-speaking Carepartners and People With Progressive Aphasia

Educational Support Group Program for Carepartners of Bilingual and Spanish-speaking Persons With Progressive Forms of Aphasia and for Persons With Progressive Forms of Aphasia


Sponsor

University of Texas at Austin

Enrollment

120 participants

Start Date

May 21, 2024

Study Type

INTERVENTIONAL

Conditions

Summary

The current study aims to examine the benefits of an education/support group program for individuals with progressive aphasia (caused by various etiologies, diagnoses) and their carepartners. The current study utilizes pre-, post-treatment, and follow-up assessments to measure effects of a psychoeducational support group and an implementation/communication skills training phase on measures of psychosocial function, communicative effectiveness and speech/language function. Analysis of study-specific surveys and semi-structured interviews will provide qualitative data regarding outcomes. Before beginning the education and support group, focus groups will be run in order to set priorities for the themes to be included in the education program. Participants will join via tele-based means if preferred and these participants may reside in the United States, or internationally including Mexico and Spain.


Eligibility

Min Age: 18 Years

Plain Language Summary

Simplified for easier understanding

This study is creating an online support group program for people with progressive aphasia (a language-related dementia) and their caregivers, with a focus on serving bilingual Spanish and English-speaking Hispanic and Latinx communities. The program will be conducted in both languages. **You may be eligible if...** - You speak Spanish and/or English - You identify as Hispanic and/or Latinx, or your family member with aphasia does - You have access to a computer or phone with video capability and internet - You can see and hear well enough to participate - For people with aphasia: you have a diagnosis of progressive aphasia, are aware of your language difficulties, and can participate in group discussion - For caregivers: you are caring for someone with progressive aphasia **You may NOT be eligible if...** - You do not speak Spanish or English at all - You cannot access video technology or the internet - For caregivers: you yourself have a diagnosis of dementia or cognitive impairment Talk to your doctor to see if this trial is right for you.

This summary was AI-generated to explain the trial in plain language. It is not medical advice. Always discuss eligibility with your doctor before enrolling in a clinical trial.

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Interventions

BEHAVIORALPsychosocial educational, support group and implementation of strategies

Psychosocial educational, support group and implementation of strategies


Locations(1)

University of Texas at Austin

Austin, Texas, United States

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NCT06511752


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